
Marcella Cooper - A carer's story
Care that meets each person's own needs
We believe
that health care and social care should meet your needs not the
needs of the system. This is called person-centred
care.
Person-centred care means you are being fully
involved in planning your care, having the information you need to
make choices, and being supported to live as independently as
possible.
Person-centred care makes sense.
- people getting it get better more quickly
- people with learning difficulties or physical disabilities get
more independent
- people's day-to-day lives get better.
The importance of the right kind of information
We want
everyone who uses care services to have a say about the care that
they need.
But to make good choices you need information that is:
- right
- with enough detail
- in a format you can understand, and
- there at the right time
Organising and buying your own support
Self-directed support gives
people more control over their care if it is funded by the council.
This means control over their care, their support plan, and the
money to pay for it.
You decide for yourself what you want, with help if you need it.
You then have an amount of money to spend on your service.
We found:
- only 1 in 3 councils are doing well on giving
people the choice of having money paid straight to them to buy
their own care
- only 4p out of every £1 that councils in
England spend on care is paid straight to people to buy their own
care.
Advocacy
If a person
wants support with making choices about their care or saying what
they think, they should be able to get a free and independent
advocacy service.
Their job is to support you to make your own decisions and speak
up for yourself, or speak up for you if that's what you want.
Good advocacy can be a great help with self-directed support by
helping you say what you want and getting any problems sorted
out.
Advocacy is even more important for people with learning
difficulties or people being treated under the Mental Health
Act.
We found:
- councils have been spending more money on advocacy, but
- only 1 in 3 councils have got advocacy
services that are really good at supporting people in making
choices and descisions.
Being able to get care when you need it
One of
the big differences between health care and social care is that the
NHS is free. But, because the NHS has to spend money where it is
most needed, sometimes people get services in one area and not in
another.
You should be able to see your GP in 2 days.
- in 2009, in some areas 3 out of 4 people could
do this. In other areas nearly everyone could.
Health trusts and social services are trying to make sure people
with higher needs are getting what they need.
- this means health care was doing less to keep people healthy or
to stop their health problems getting worse, and
- 3 out of 10 social services would not pay for
people in independent living who did not have high needs.
Making things fairer
People living
in poor areas or from some ethnic groups were not as healthy as
others. But they also got worse health care than others, despite
needing it most.
- people living in poor areas die younger than others and it is
getting worse
- people living in poor areas do not get as much help to give up
smoking.
Respecting people's dignity and rights
Respecting
people's dignity and rights is really important for all good health
care and social care.
We found that:
- 9 out of 10 NHS trusts passed the checks we
have on looking after people's rights and treating people equally
and fairly
- some people from ethnic groups said they did not like the way
they were treated by GPs and outpatients. This is because they were
not involved in their care and doctors and nurses talked in front
of them as if they were not there.
- councils did not do quite as well in this area as they did in
2008.
Using local people's views to help make services better
All health care and social care services have to
make sure that local people are helping to make their services
better.
This gives people the chance to say what they think about how
services are doing and what happens when they use them.
We found:
- nearly all the NHS trusts passed our checks for including
people
- nearly half the councils were marked as "strong" at including
people, but
- some trusts and councils were not involving some groups of
people well enough. Like, people who were very ill, those from some
ethnic groups, children and older people, and people who are in
prison.